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Oliver SacksA modern alternative to SparkNotes and CliffsNotes, SuperSummary offers high-quality Study Guides with detailed chapter summaries and analysis of major themes, characters, and more.
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Tourette syndrome has existed throughout history but was first observed and named by Georges Gilles de la Tourette in 1885. While symptoms can vary based on the individual, a typical Tourette’s patient displays “convulsive tics, by involuntary mimicry or repetition of others’ words or actions (echolalia and echopraxia), and by the involuntary or compulsive utterances or curses and obscenities (coprolalia)” (73).
Sacks points out that people with neurological conditions must lead “double li[ves]” as they tend to both themselves and their illness (73). Tourette’s in particular asks the patient to manage not only their own needs, but their compulsions and tics as well. Negotiating Tourette’s can be challenging and frustrating as the patient tries to understand where their identity begins and their illness ends; this can lead to either unproductive or harmful relationships with oneself. Doctors viewed Tourette’s as a moral disease until the 1960s, when it was discovered that the drug haloperidol could ease symptoms. Yet Sacks urges the reader to view Tourette’s syndrome neither as solely chemical, existential, or moral, but as a fusion of the patient’s inner and outer selves.
Sacks introduces Dr. Carl Bennett, a surgeon whom he met at a Tourette syndrome conference. Sacks is fascinated to learn Bennett’s profession, and takes him up on an offer to visit him in British Columbia. He notices that Bennett’s tics and compulsions revolve around touching his mustache and glasses, as well as touching things in a symmetrical fashion. Bennett can mostly keep them under control while doing something all-consuming like driving, but they come back when he needs to stop at a red light. Sacks and Bennett discuss Bennett’s relationship to his body and the space around it—specifically, how his proximity to stimulating objects or people can prompt specific tics or compulsions. Anxieties or fears he harbors in the back of his mind can also manifest this way.
Bennett’s Tourette syndrome began at age seven with tics but was not actually diagnosed until age 37, often alienating him from his peers yet also making him more resourceful and independent. He knew from a young age that he wanted to be a surgeon but struggled in medical school. Later, he struggled to find patients who would trust a surgeon with Tourette’s, but he eventually won the respect of his colleagues and patients.
Before observing Bennett at work, Sacks watches Bennett begin his day riding an exercise bike while smoking a pipe and reading surgical texts, all in an effort to calm his mind. He does not experience tics during his workout, but they return immediately afterwards. When the two men arrive at the hospital, Sacks is surprised to see how comfortable Bennett is displaying his tics and compulsions in front of his colleagues; he tells Sacks he is more careful expressing his tics in front of people he has just met. Sacks observes him “lying, half-curled on the floor, kicking and thrusting one foot in the air […while] describ[ing] an unusual case of neurofibromatosis” (86).
Sacks follows Bennett as he meets with outpatients. One needs to have a melanoma excised from her buttock, and Sacks is impressed with how Bennett manages his tics, though he does question Bennett’s decision to show the patient the lump he removes. Similarly, Bennett seems to need to tell another patient exactly what he was doing to a T-tube in her bile duct, and she eventually asks him to stop explaining the anatomical aspects of the procedure. Still, Bennett has many patients and strikes Sacks as a natural physician. Bennett’s warm bedside manner is the opposite of what many might expect of someone with Tourette’s: “[Bennett] had struggled against this; he had come through and braved life, braved people, braved the most improbable of professions” (89). Sacks believes that patients sense this bravery, which is why they trust him so completely.
The next day, Sacks observes Bennett perform a mastectomy, curious to see how he is able to manage his Tourette’s during a longer surgical procedure. Bennett scrubs himself beforehand while his tics intensify, yet once the mastectomy begins, he is able to complete the complex surgery without any of his tics or compulsions taking hold. He tells Sacks, “‘Most of the time when I’m operating, it never even crosses my mind that I have Tourette’s” (91). Sacks outlines a theory that people with Tourette’s are sometimes able to suppress their tics when involved in an activity that features rhythm and flow, such as playing music, driving, or, in Bennett’s case, performing surgery. When Bennett is performing a procedure, he feels most like himself.
Once the mastectomy is complete, Sacks and Bennett go for a swim in a lake. Sacks wonders just how much Bennett has to suppress himself, thinking back to a wall in Bennett’s office where he had once punched a hole. He considers the anxiety, panic, and anger that Bennett must harbor but never allow to bubble over, particularly at work. Many patients with Tourette’s cannot conceive of their syndrome as something external to themselves because the tics and compulsions are, in their minds, intentional. Bennett was unable to take haloperidol due to harsh side effects, he considers Prozac to be a lifesaver.
When Sacks is due to fly home to New York City, Bennett, who has received pilot training, offers to fly him to nearby Calgary airport to catch his flight home. Despite his mixed feelings and fear, Sacks agrees. As Bennett flies, Sacks sees something childlike in his demeanor, and wonders if perhaps his fascination with the spinning propellor and the attraction to risk that many Touretters experience could explain why flying appeals to him. Sacks sees that Bennett can be just like any other pilot flying into an airport, and his Tourette’s is less noticeable to others at such a high altitude. He lands the plane safely, and Sacks watches as Bennett flies himself home once again.
Sacks receives a phone call in October 1991 from a man informing him of the story of a 50-year-old man named Virgil who has been virtually blind since childhood, but who may have an opportunity to regain his eyesight. Virgil has thick cataracts in addition to retinitis pigmentosa, a genetic condition that slowly eats away at the retinas. However, his fiancée Amy and her ophthalmologist are unsure if he truly has retinitis pigmentosa, because he can still see some light, darkness, and shapes. They encourage Virgil to consider a cataract removal surgery to see if he might have some vision remaining, and Virgil agrees to have his right cataract removed first.
According to Sacks, a neurologist’s career is full of “novel and unexpected situations, which can become windows, peepholes, into the intricacy of nature—an intricacy that one might not anticipate from the ordinary course of life” (103). He is curious about what vision might mean for Virgil, and he views this as an opportunity to see if one needs experience in order to see and process the world—something that has been the subject of philosophical and psychological debate for centuries.
Virgil had poor eyesight even as an infant, and suffered from meningitis, cat-scratch fever, and polio when he was only three years old. After two weeks in a coma, he emerged with severely damaged retinas. When he was six, he developed cataracts in both eyes, which worsened his vision even more. He was sent to a school for the blind to learn Braille. As an adult, he trained as a massage therapist and moved to Oklahoma, where he made a modest but steady life for himself. However, Amy sees Virgil as stagnant, and she hopes that restoring his sight might help him put himself out in the world with more confidence.
After Virgil’s first surgery, Amy’s diary notes that he can in fact see, which she describes as a miracle. However, Sacks learns from speaking with Virgil that he couldn’t recognize anything post-surgery until he heard his surgeon speak: “[T]his chaos of light and shadow was a face—and indeed, the face of his surgeon” (107). Unlike patients who develop cataracts later on in life, Virgil has no visual experience of the world around him—no understanding of how light, shadow, color, and motion work together. Consequently, his brain can’t compute what he is seeing. Post-surgery, he can see colors and movements but can’t identify what they are. Furthermore, parts of Virgil’s retinas have deteriorated over the years, which makes it difficult for him to focus his eyes. Amy hopes his eyesight will improve more when they operate upon his left eye.
When Sacks and his colleague Robert Wasserman fly out to Oklahoma, newlyweds Virgil and Amy meet them at the airport. Virgil does not appear to be in good health, and he cannot make eye contact or look at facial expressions: “Virgil’s behavior was certainly not that of a sighted man, but was not that of a blind man, either. It was, rather, the behavior of one mentally blind, or agnosic” (110). As they drive away, Virgil is intrigued by moving cars and buses, and he can identify traffic lights changing. However, he struggles to read whole words, and his first trip to a grocery store resulted in a visual onslaught that terrified him. When they arrive at his house, Virgil walks up to the front door unassisted and unlocks the door—a task he has been practicing since his surgery. Still, Virgil struggles with stairs and is confused by his own shadow. He has lost the confidence he felt moving as a blind man, and he ironically feels more disabled than ever.
Wasserman and Sacks conduct tests on Virgil and observe him in his home. They ask Virgil to watch a baseball game on TV, which he used to listen to on the radio. He can follow the game with the sound on, but when the TV is muted, he is lost. Although Virgil does enjoy seeing color, he is unable to match colors and often calls them by the wrong names, which Sacks calls color anomia or agnosia. He slowly memorizes shapes, but he struggles to understand solid objects. Amy has had to reintroduce him to his house and the items in it, and he himself “ha[s] established a canonical line—a particular line up the path, through the sitting room to the kitchen, with further lines, as necessary, to the bathroom and the bedroom” (120). From there, he has slowly learned how his home is visually constructed.
Sacks compares Virgil’s experience to that of a newborn baby who has not yet learned “perceptual constancy”: the correlation of the various appearances of certain objects. This is an enormous task for an infant, and Virgil, who has forgotten most visual cues, struggles to learn and remember them now.
The doctors, Amy, and Virgil go on an excursion to a zoo, where Virgil can identify an animal’s features but cannot describe the animal as a whole. When they go to lunch, Virgil grows increasingly visually exhausted and has difficulty eating.
Virgil begins buying miniature toys as a way to study real-world animals, humans, and objects, learning through his ability to play. Still, Amy reports that Virgil “relapses” when he’s tired or confused, going about everyday routines the way he used to as a blind person. Sacks says that this is to be expected, yet he and Wasserman are baffled when Virgil begins to have inexplicably blurry vision for several days at a time. Sacks theorizes that Virgil’s cerebral cortex, the part of the brain in charge of processing visual information, is overwhelmed and shutting down to prevent neural overload. Virgil also tends to act blind when around family members who were accustomed to his blindness. His inability to adapt to his newfound sight and his efforts to give up his use of touch cause him psychological discomfort and eventually deep depression.
Sacks points out that babies undergo a nearly perpetual process of visual learning that’s quite different from what newly sighted adults experience. Many doctors have noted newly sighted patients claiming that they needed to “kill” their blind self in order to be a “seeing” person, implying a radical change of self and identity that goes along with gaining vision later in life.
After Virgil’s left cataract is removed, he returns to his work as a massage therapist but is disturbed by seeing his client’s actual bodies, which appear different from his tactile memories. He begins to close his eyes during massages to regain his confidence. As he tries to adjust to seeing life, he finds himself deeply conflicted, unsure if he wants to change careers and if he might ever be comfortable driving or doing other normal “sighted” things.
Virgil’s family responds positively when they see him at Christmas, noting that he seems more alert. Sacks hopes that their acceptance of Virgil as a seeing person will give him a much-needed morale boost. However, Sacks receives a call later that winter that Virgil has experienced a bout of lobar pneumonia as well as a collapsed lung in the local intensive care unit. Despite beating the pneumonia, Virgil now faces respiratory failure. This is complicated by Virgil’s other health issues, as well as Pickwickian syndrome—a depression in the respiratory center of the brain that obstructs breathing. Virgil also claims he cannot see, though Amy says he is still acting like a sighted person. When he is finally released from the hospital, Virgil must leave his job due to his constant need for an oxygen cylinder. This causes him to lose his home as well.
Amy maintains that Virgil lost his sight but has since gained it back, yet Virgil’s doctors at his rehabilitation center tell Sacks that the only sight he has left is color perception. Confused by this development, Sacks and Wasserman fly the couple to New York City for further testing. When Amy and Virgil arrive, Sacks can see just how much the latter’s health has deteriorated. Shockingly, testing reveals that his vision is worse than it was before the cataract surgeries; he can see a shape or object every once in a while but quickly forgets it. Remembering how Virgil complained about the sun’s glare after his surgeries, Sacks and Wasserman theorize that perhaps he burned out what remained of his retinas.
Like the doctors who documented similar cases in the past, Sacks is fascinated by Virgil’s story, yet he notes the twist of terrible irony at the end. Despite his usual calm demeanor, Virgil becomes prone to fits of rage after he survives pneumonia. Sacks says that Virgil was stuck between two worlds and that his ultimate loss of vision was in some sense a gift.
exhibit on memory. Magnani’s work features in the exhibit: specifically, 50 paintings and drawings of his childhood home in Pontito, Italy. Although he was born there, he has not been back in 30 years. The juxtaposition of Magnani’s scenic paintings alongside photographs of the same views in contemporary Pontito prove his remarkable memory and attention to detail, which has earned him the nickname “The Memory Artist.”
Sacks wonders if Magnani is an eidetic artist—someone who can hold a scene or memory in their head for days, months, or years and then reproduce it accurately. Magnani invites Sacks to his home, where they tour his many paintings of Pontito while Magnani reminisces. He seems unable to help himself and tells Sacks the only way his brain quiets down is by painting what he remembers.
Magnani was born in Pontito in 1934, when the village held approximately 500 residents. Nestled in the Tuscan Hills, the remote village had ancient origins and changed little throughout history until the beginning of World War II. In 1942, Magnani’s father died, and the Nazis invaded, kicking out the townspeople. When the residents returned after the war, many of their homes were defaced or destroyed; they struggled to return to normal life, and the population of the town decreased to 70 people. Pontito left the town in 1946 to attend school in Lucca, Italy (his paintings, however, are all set prior to 1943). After training as a woodworker, Magnani tried to return to Pontito, but there was no work available for him. After living and working on cruise ships, in 1965 he decided to settle in San Francisco. He claims he never thought about Pontito during his many travels.
Magnani eventually developed a mysterious neurological condition that he never received a diagnosis for. While staying in the hospital, he had vivid dreams of Pontito. He felt something was calling to him and telling him to paint and draw what he remembered of his village, despite his having no real artistic training: “[H]e was also frightened by the power he now felt—a power that had seized him and taken him over but that he could perhaps control and give voice to” (152). Magnani’s acquaintances, including his brother-in-law, confirm that he did not have this impulse to talk about and paint Pontito nonstop before his mystery illness.
Over time, Magnani’s visions of the village intensified, and he even began seeing them in daylight. He not only sees the place, but hears sounds like church bells and smells the nearby nut and olive groves. Sacks is reminded of psychic seizures, recognized by John Hughes Gastaut in the early 20th century, in which the patient has “commanding hallucinations” and an overwhelming sense of nostalgia (154). In the mid-20th century, neurologist Henri Gastaut wrote a book claiming van Gogh likely had psychic seizures (now called interdictal personality syndrome, Waxman-Geschwind syndrome, or Dostoevsky syndrome), and in 1961, neurologist Norman Geschwind noted that patients with temporal lobe epilepsy often showed productivity—sometimes creative ambition. This may reflect the strong connection in the brain between sensation, emotion, and memory, which allows the patient to feel “transported” into another consciousness while accessing a memory.
Magnani struggles with this doubling of consciousness; despite living in San Francisco in the 1990s, he feels that he is more often somewhere in Pontito pre-1943. Sacks says, “The cost of Franco’s nostalgia and art, then, has been his reduction to a sort of half existence in the present” (157). This intensity only grows with time. Sacks theorizes that, in addition to temporal lobe epilepsy, Magnani may need an outlet for deep, complex emotions he internalized regarding his childhood home and family; Magnani was particularly close to his mother, and her death in 1972 devastated him so much that he temporarily stopped painting.
Despite his desire to go back to his hometown, Magnani manages to self-sabotage before any trip, perhaps fearing Pontito would not be the way he remembered. Sacks sees this paradox as the heart of nostalgia, which longs for the past, but a past that has been turned into a fantasy. Sacks visits Pontito for himself in 1989, hoping to see the sights in person and speak to some of Magnani’s remaining relatives. While many of the paintings prove strikingly accurate, others are misleading, allowing the village to feel bigger than it truly is. Strong memories are typical of temporal lobe experiential seizures and indicative of the complicated nature of memory. No matter how concrete Magnani’s memories may be, they are always, in some regards, a reconstruction.
Sacks posits that painting this village attempts a “transfiguring vision of childhood with the place, Pontito, taking the place of the people—the parents, the living people—who must have been so important to the child” (166). This may also explain why there are rarely any people in Magnani’s paintings. Rather than characterize the paintings as fantasy, Sacks sees them as an “intensification” of memory (167). In addition, Magnani’s mission is a cultural one to preserve his beloved village from the cruel passage of time.
When Magnani first met Sacks, he said that returning to Pontito might be the end of his memories and art. However, when Sacks speaks about Magnani at a conference in Italy, Magnani begins to receive invitations to show his work there, and he decides to finally return. He finds that the town both is and is not like his memories. He misses the sounds of animals and humans from his past, but he is embraced by the locals, who view him as a prodigal son. When Magnani returns to San Francisco, he experiences an existential crisis in which his memories of Pontito from childhood and the present day begin to collide. Eventually this dies down, yet Magnani claims to have lost the fantasy of the place and stops drawing or painting for a month.
In 1991, Magnani and Sacks return to Florence for an exhibit of Magnani’s work. He wishes to visit Pontito again, but this time to return and work alone within the village. They visit Magnani’s sister, who has retired to the village. Magnani tells Sacks he is sketch the town for a few weeks and refamiliarize himself with it. When he returns to San Francisco, he feels reinvigorated to return to his artwork. Although the paintings are not dramatically different, he is still disturbed by just how much Pontito has, in his eyes, changed. He no longer wishes to return, fearing that it would further compromise his memory and fantasy, but he plans to keep working and to keep the promise he made to his mother to paint Pontito.
This portion of the book contains three essays about three patients whose identities are jeopardized or challenged due to a neurological crisis. Sacks views identity and self-perception as fluid, often changing in response to neurological change. For example, Bennett in “A Surgeon’s Life” can often control his Tourette’s when he is in a flow state of work, forgetting he has it altogether until he is interrupted. In some sense, there are two Bennetts: one with Tourette’s and one without.
Rather than classifying his patients’ adaptations as “good” or “bad,” Sacks seeks nuance when assessing how these patients’ identities have shifted. This is clearest in “To See and Not See,” in which Virgil regains his sight only to lose it once again. Although this second loss of sight seems catastrophic, Sacks describes the situation as an ironic paradox—one in which Virgil is relieved to go back to the state of being he was once accustomed to. Sacks also visits these men in their homes, at work, and elsewhere to understand their sense of identity holistically. This gives him insight into how personal and cultural issues interact with a patient’s neurobiology, as Sacks explores in “The Landscape of His Dreams.” Magnani’s reminiscences are both an emotional expression and a cultural preservation of a dying Italian village. Sacks even uses elements of art criticism to learn more about Magnani’s mysterious condition, thereby using what might seem like an unconventional method of analysis to better understand Magnani’s perspective.
Relatedly, Sacks places less emphasis on statistics and more emphasis on the human context of neuroscience—in particular, how our understanding of disease has evolved over time. By tracing the history of Tourette syndrome, for example, Sacks places Bennett’s story within our cultural understanding of the condition. While Bennett’s story is exceptional in many ways, it is also representative of what was known at the time of publication, and of what physicians still don’t know. For example, while there is some evidence that rhythm and focus can suppress tics, Sacks cannot explain how or why exactly Bennett is able to do this for extended periods of time during surgery. This approach leaves room for mystery within medicine, reminding the reader not only of every patient’s subjective experience and individual story, but also of the many questions neuroscientists may still need to answer.
Sacks continues to bring in his first-person perspective when necessary while otherwise centering the patients’ voices. He approaches each patient with warmth and compassion, but he does not shy away from sharing observations and even judgement. This gives the reader a sense of Sacks as a character and narrator; unlike an objective medical record or case study, Sacks brings his own humanity to the story, even during moments he is not proud of, such as assessing how unhealthy Virgil looks upon first meeting him. This moment reflects his own flaws and personality, allowing him to appeal to a wider audience rather than just his fellow neurologists and physicians.
By Oliver Sacks